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Recognizing World Pulse Leaders!

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Ogo Maduewesi

About Me: 

Ogo is a Daring, Innovative, Resilient and dynamic lady, a self-taught in her focus area, an advocate for positive change, healthy living and Liberation from restrictions of social, economic and health conventions. Selfless and passionate about empowering & impacting positively life’s of individuals’ living with vitiligo, altered image & skin conditions, plant- based nutritional therapies, motivating behavior change around unusual visual appearance and empowering young single ladies.

I am the founder/Executive Director of Vitiligo Support and Awareness Foundation (VITSAF) is a not-for-profit, patient–driven, patient-advocate organization incorporated in Nigeria and passionately concerned about the needs of persons living with Vitiligo, skin imperfections, altered images and autoimmune Disorder primarily in Africa, helping ameliorate the agony people suffer as a result of turning from black to white. VITSAF’s major goals are absolute Support to its members, extensive Vitiligo and skin health awareness and enlightenment; motivating behavior change around unusual visual appearance through Entertainment Education, understanding autoimmune disorder and achievement of World Vitiligo Day - June 25th.

Vitiligo is a hugely stigmatized condition in Africa, facing not only a visible, disfiguring skin problem, but with widespread social discrimination fueled by powerful myths, discrimination and stigma. The myth about vitiligo being contagious is likely the result of a common fear: people stay away from anything different. It has a major impact on the Quality of Life (QoL) of patients. It is one of the most psychologically, emotionally and psychosocially devastating chronic skin conditions, which has a major impact on both patients and their families. It is a totally neglected and underestimated condition by the health sector, they label it cosmetic and not life threatening. The main contributing factor to social stigma is that Vitiligo is considered by many as a wrath of the gods, confused as burns from fire, mystery, nemesis, magical, spiritual attack etc.

My Passions: 
Innovative personal change, Positive Living, Empowering and Impacting Lives of individuals living with Vitiligo and altered images, Plant based Nutrition
My Challenges: 
Communicating my causes and ideas, Resources (Human and others)
My Vision for the Future: 
To achieve a Positive Lifestyle and awaken Positive Consciousness for individuals with vitiligo, skin imperfections and altered images in Africa by 2020
My Areas of Expertise: 
Skin imperfections, Altered images, Confidence Building, Healthy eating, Positive Living
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