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Need: Call to Action - Please support our Advocacy for World Vitiligo Day 25June

I got on Facebook in 2008 with high expectations of massive vitiligo awareness, instead I found a set of people comfortable within the vitiligo circle, not out to enlighten or influence public’s attitude nor motivate behavior change. I was overwhelmed with thoughts of how to drive global extensive vitiligo awareness, and then thoughts about Michael Jackson flashed and stuck. I was working on contacting him when he passed on 25 June 2009. I was sad, yet thus came the thought to commemorate his passing day as World Vitiligo Day.
My thinking was simple – the date would resonate within the broader community, albeit unfortunate, its connection to Michael Jackson, whose vitiligo was the most famous and publicly debated case of all time.

It is my dream that extensive awareness/enlightenment will awaken public’s consciousness and willingness to act in health sector to save millions of people worldwide.

Over 100 million of people suffer from this skin condition globally, but there is no cure in sight. With focus on collaboration efforts, we can bring that number closer to zero. Take action today and urge the UN Secretary-General to prioritize multilateral efforts in healthcare and education for this neglected disease.

Please support us with a Signature on www.25june.org and please do share

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otahelp's picture

ignorance may be excused

So many people do not know what vitiligo is all about. Ignorance may be excused in this case. Like you rightly said, it is said not to be life threatening but from you enlightenment, i have come to understand what trauma people living with vitiligo especially women and children could be going through psychologically and otherwise.

The awareness must be raised and in the appropriate quarters for it to be noticed.

Ride on and let the light continue to shine.

Our Lady of Perpetual Help Initiative
Lets keep the light shining

VITSAF's picture

Thanks so much otahelp

Thanks so much for your kind words, I truly appreciate. I am glad you are informed about vitiligo now and that you will communicate that to networks

Please help share.

Thank you and warm regards,
Ogo

Improving the Quality of Life of individuals (primarily women) living with vitiligo, skin imperfections altered images and autoimmune disorder!

www.vitsaf.org
www.25june.org
https://www.facebook.com/WorldVitiligoDay
https://www.facebook.com/groups/

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