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Breaking Free from Isolation

Many woman face difficult challenges to accessing the internet. The internet is my lifeline to the outside World. I suffer from a incurable illness called endometriosis among other life threatening conditions. Because of endometriosis I am often in a lot of pain and am unable to go out. I participate in protests through livestream and keep in contact with family cross country on facebook. I am also a musician and design my own website to promote my music to the whole World. I currently have fans from across the globe. Because of my illness my family has financial difficulties and so there is constantly a worry of losing internet service. When that happens I suffer depression and anxiety. My music is politically and spiritually charged. I talk about many issues that have faced women for generations including healthcare, womens rights, traditional roles, and inspiring unity. Making music has never been as much about making money as it has been about spreading awareness of the injustices we all face and bringing about a new way of thinking.

I am thankful for my husband who has been there for me even though I have many health issues. He makes a modest living but thankfully has a good work ethic that has been able to sustain us, even if it's barely enough in the current economy. As the mother of a daughter I feel it is my duty to try and make this World a better place even if it's only in a small way. Through my music I am handing down a legacy of my life and a history of my generations struggles and viewpoints. Going forward my daughter is the next generation of women and I have raised her to be independant minded and persistant. She also stuggles with epilepsy and despite that is doing well in school and is known for being incredibly social. Even at her young age she is breaking barriers and shaking things up! I am hopeful that the next generation of women can take it one step further and achieve equality within their own lifetime! Internet access is crucial to that by providing educational resources and inspiration. Thank you for taking the time to read a little about my life and consider me for Voices Rising! I am honored to be a part of World Pulse and everything that it represents!

This story was written for World Pulse’s Women Weave the Web Digital Action Campaign. Learn more »


JT Long's picture

What a Voice

Thank you for sharing your inspirational story. You have been very creative about finding ways to express your very clear goals. I look forward to hearing more about how you are sharing your unique perspective with new audiences?


telling stories; creating communities

Ora Fireflyz Hill's picture


My pleasure JT. I'm glad you enjoyed it.

I am also a musician and know the power of music to change hearts, minds and bodies. Thank you for writing such a powerfully personal piece and describing the way the internet makes it possible for you to connect to the larger world and share your music. I love the picture of you and your daughter and appreciate the link to your music.

The pulse in your voice is the pulse of the world growing in it's capacity to embrace equality for all women and girls in our global community.


Ora Fireflyz Hill's picture


Thank you very much!

Thank you also find this time for us to talk about your life, I hope that this time it will. I agree ave you on confirmation of the internet as educational resources and inspiration. All my greetings to your daughter


Ora Fireflyz Hill's picture


Thats very kind of you.

phoang's picture

Thanks for sharing

Hi Ora,

Thank you for sharing your story and music with all of us. Music is a great way of reaching the masses, and it's inspiring that you are able to use your music as a means of raising awareness for politically and socially significant issues that impact us all. All the best to you and your family.


Ora Fireflyz Hill's picture



ccontreras's picture

Hi Ora!

Thank you for sharing your powerful story! I am really inspired to know how much the internet has allowed you to have an active life, despite your illness. Also, how you are able to express yourself through music. I truly admire your courage for being out there virtually being a part of protests and making music for justice and peace.
Peace and love,
Cynthia x

"I embrace emerging experience. I am a butterfly. Not a butterfly collector." - Stafford

Ora Fireflyz Hill's picture

Thanks Cynthia

Sometimes it feels like it's not enough, but I'm only able to do my best with cards that have been dealt to me.

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