Community Update

World Pulse Toolkits Available!

At World Pulse, we recognize the need for ongoing learning—for you and for your community! Our toolkits are all available here.

We are especially excited to share our signature Citizen Journalism and Digital Empowerment Curriculum. Start learning today!

Introducing myself and my journal: VISUAL FEAR

About Me:

VITILIGO poses a lot of challenges for dermatologists and for the entire community of vitiligo patients because we do not understand or know as to what derails the immune system. The research however continues and the mystery shall be solved one day but it remains a fact that the mystery has sent a lot of fear in the individuals living with this condition of what tomorrow will be for them......................................................................................................

It still remains a,mystery to me as to how my vitiligo started for i just spotted a red patch my lips. i was 10years of age and very ignorant of what the monster patch would turn to be in the nearly two decades' time.The first experience of having vitiligo patch did not cause any panic to me for i knew very little in life.At about 15years, i had the biggest shock seeing my palm tuning white, vitiligo was spreading rapidly on my two palms leave alone for the over stretched mark on my lips.This is the time i began to experience weird looks from from friends who would go as far as comparing me to a madam teacher who used to apply a very conspicuous red lipstick......"Laban, are you competing miss *Makalanya in applying lipstick?.............."they would mock me as the queue for their meals at the dinning hall.

Things took the worst turn and i had to run to the nearest district hospitals to seek for medication during school holiday, however, i was never helped as i had anticipated. the doctor simple told me i was suffering from an incurable condition of which he didn't even mention the name.I finally settled on traditional medicine-herbal- that yielded no results.I simply reached a point of no return.Life was cruel and i never wanted to face the ridicule of the students as the new term opened..............................

Life took its own course and even with the vitiligo spreading to the rest of my body parts, i could just pray that it doesn't turn me white all over....

SMILE, TOMORROW WILL BE BETTER.
Atale from the 14th century (the time when the black plague razed the entire european continent and eliminated a fouth of the population)tell that a traveller walked by night to London. In the midst of the darknesss he met two strangers with whom he started to converse and he soon learned that they were plague and fear. "We are ready to kill 10,000 souls in London over the next few days",stated plague.The traveller replied;"You youself will carry out the slaugter ,will you?""no," replied plague straight away,"I will snatch the lives of one thousand or two thousand and fear will take care of the rest.
Fear of how i would wake up and find out that my vitiligo has spread to most parts of my body.....What if it appears on my face, my chest , my fingers , my neck?Do you also ask yourself the same questions over and over again?Then you could be among the many that fear factor will take care of. So what next...?I strongly believe that with proper understanding of vitiligo to the patients and the lay public we shall have half managed the problem.It is for these reasons that VITILIGO SOCIETY OF KENYA (VISOKE) under guidance of Vitiligo Support and Awareness Campaign (VITSAF)has come at the right time to help deal with the plight of people living with vitiligo and people affected by vitiligo.

My Passions:
helping the weak in the society

My Challenges:
limited time, limited fund

My Vision for the Future:
aleviate suffering among vitiligo patients

My Areas of Expertise:
community counselling

Comments

Nakinti's picture

Welcome dear!

Hello Dear Visoke,
Welcome to World Pulse. You have just joined an amazing platform of women who use the power of the word to inspire change. At world pulse, sisterhood is the strongest asset that binds everybody together.
I encourage you to take advantage of the numerous resources and features available through our vibrant online community. We look forward to your active participation here.
To get started, follow this link
http://www.worldpulse.com/pulsewire/about/guide

Dear Visoke, I am proud of you for picking up courage to talk about your Vitiligo situation right here on World Pulse.
You are in fact the second World Pulse member to talk about this condition in one week. I will like you to connect with VITSAF, she is a vitiligo patient and activist from Nigeria...you won't regret connecting with her. Follow this link to get to one of VITSAF's journal entries so that you can get an easy access to send her a friend request http://worldpulse.com/node/69193
Waiting to see you two connect...I will stand by you always.
Sending you love from Cameroon.

Nakinti B. Nofuru
2013 VOF Correspondent
Reporter for Global Press Institute
Bamenda - Cameroon
Email: nakinti@globalpressinstitute.org
nakintin@yahoo.com

Greengirl's picture

A Warm Welcome to you Visoke

How nice to have you join the World Pulse family. Just as you must have already heard from Nakinti, there are numerous resources and features that you will find on World Pulse, that will further empower you to pursue your dreams and passions.

Please feel free to reach out to the many wonderful people on World Pulse. I look forward to learning more about you and your work through your journal posts and all other offers you may want to share.

As a first step, I suggest that you you post this beautifully written story of your in your journal where more members of the community can easily find it.

I look forward to hearing your unique voice through your writings!

Warmly,

Greengirl

visoke's picture

Hi Ogo my long time friend.

Ogo, World pulse has offered us yet another site.By following your articles i happened to bump onto this wonderful site and i have got no big deal joining the platform of women for we are all human.

A lot of kudos to the persons behind the formation of this wonderful site. whether male or female , we all have issues that we have to share.Greengirl and Nakiti, thanks and you too are wonderful.

Greengirl's picture

You are always welcome Visoke!

Make your voice heard, we are listening!

Greengirl

VITSAF's picture

Welcome James

Great to have you here, for sure its another forum for us to get our voices out there......welcome and I hope you find it interesting and educating as I am already enjoying. Do feel free to ask questions anytime, we have wonderful women all around here ready to assist anytime ..........

Improving the Quality of Life of individuals (primarily women) living with vitiligo, skin imperfections altered images and autoimmune disorder!

www.vitsaf.org
www.25june.org
https://www.facebook.com/WorldVitiligoDay
https://www.facebook.com/groups/

Magazine »

Read global coverage through women's eyes

Letters to a Better World

Letters to a Better World

Campaigns »

Be heard at influential forums

WWW: Women Weave the Web

WWW: Women Weave the Web

Programs »

Help us train women citizen journalists

World Pulse Voices of Our Future

World Pulse Voices of Our Future

Blog »

Read the latest from World Pulse headquarters

World Pulse Launches our Inaugural Community Advisory Board!

World Pulse Launches our Inaugural Community Advisory Board!

Partners »

Join forces with our wide network of partners

Nobel Women's Initiative

Nobel Women's Initiative