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sickle cell anemia silent killer

Hi every one
we only hear polio, malaria, HIV/AIDS, and so on....
They are so many disease out there that people never cared about and may be they are worse than those we are familiar with. I wonder , why do multinational organization, NGO, UN organisation, etc only release fund and program for those we know?

I think its should be best that they can survey other disease and find a way to help those people. In African society, some people say its witchcraft, other say its curse but let me tell you its sickle cell anemia, called in french Drepanocytose(SS).

Having a member of my family suffering with that it the worse experience i have ever had in my life. During time of painful bones, joint, loosing blood etc we go to the hospital some time even nurse and doctors are tired of you coming every day. other children around calls names and say that you are useless human been....................................

Guys its so sad, emotion i feel that i cant continue this story, but i am requesting that any one who can help in building a center to help those mile of children suffering with the silent killer we could appreciate. helping by informing people the causes of the disease, proving care and support for family members,..........................

Comments

Lortoria's picture

I can relate

Hi Gloria,

I'm a sufferer of Sickle Cell Anaemia too, so I know how you feel. I have just started to do some research to help me understand my disease, and how to better educate people in my community. I hope that together we can raise the profile of Sickle and stamp out the prejudice linked to it.

Stay strong,

Lortoria

Lortoria McDonald

lortoria@gmail.com

Twitter: https://twitter.com/illumaink
New website coming soon!

Gloriabit's picture

dear Lortoria

I am sorry for taking much time before answering you, i feel happy reading someone who can understand what i am saying.

here is my numbers +243995944111, my mail glorbit@yahoo.com , my facebook account Glorbit bit
lets talk and exchange much more.

be strong swiry

Gloria

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