Community Update

World Pulse Toolkits Available!

At World Pulse, we recognize the need for ongoing learning—for you and for your community! Our toolkits are all available here.

We are especially excited to share our signature Citizen Journalism and Digital Empowerment Curriculum. Start learning today!

WOMEN, HEALTH AND HUMAN RIGHTS IN THE CONTEXT OF HIV.

I begin by echoing what the center for health and gender Equity said that voluntary family planning and other reproductive health services are an important entry point to addressing HIV risk factors (including gender-based violence and sexual coercion), safe sex negotiation, voluntary counseling and testing, prevention of vertical transmission of HIV, and other prevention interventions. These services also reach women, youth, and men who would not seek out HIV services independent of other health services because of stigma or other barriers (2002–2012 Center for Health and Gender Equity). It is also agreeable that Voluntary family planning and other reproductive health programs empower women living with HIV to prevent health complications related to unintended pregnancies and to plan pregnancies based on their child-bearing desires and health needs.

The bottom line is- Linking HIV and reproductive health programs, like voluntary family planning and maternal health, improves access to both HIV and reproductive health services, reduces HIV-related stigma and discrimination, and extends programs to underserved populations (Ibid.2002-2012-report Tue 4 September2012.)

Kaiser Daily Global Health Policy Report; Wednesday, September 05, 2012 reported......

"Kenya has launched an investigation after researchers claimed HIV-positive women were being routinely sterilized without their consent in government hospitals," the Guardian reports. The African Gender and Media Initiative issued a report "based on interviews with 40 women, suggest[ing] the practice was widespread and ongoing," according to the newspaper. "The report also includes examples of coercive tactics used by medical staff to obtain consent -- for instance, threatening to withhold antiretroviral medication or baby milk if the woman did not agree to the procedure," the newspaper writes. "'These allegations are very serious and the Kenya Medical Practitioners and Dentists Board is going to investigate them before appropriate action is taken,' Shariff Shahnaz, the director of public health, told the Daily Nation newspaper," the Guardian reports (Mojtehedzadeh, 9/4).

However, as a woman, I was literally shocked at the results of study by the African Gender and Media Initiative based on interviews with 40 women in Kenya over what was claimed to be coerced sterilization without their consent(Sara Mojtehedzadeh in The guardian, Tuesday 4 September 2012).Surprisingly, the report suggested that the practice was widespread and ongoing. These shocking reports send Kenya (noted in the report by Kaiser.2012 above) to launch investigations after researchers claimed that HIV-positive women were being routinely sterilised without their consent in government hospitals. The report said some medical staff had coerced women into being sterilised by threatening to withhold antiretroviral drugs. Some woman who had sterilization in a mobile clinic run by Marie stops claimed there was no consent. This issue, as the report says is serious and has forced the government to start investigations into the matter(Ibid.2002-2012-report Tue 4 September2012.)

Pastoral concerns;
As I read through the report I pastorally encounter various realities for the women living with HIV in Kenyan communities;

o Exposure to threats in life; Women living with HIV, who underwent through the procedure as the report says, have had real challenges with their marriages. In African communities where I come from particularly the Kenyan communities, inability to bring forth a child is a serious cultural and community dilemma. This leaves the already vulnerable woman face the second and most crucial demand to bear children. In a nutshell, sterilization renders a married woman irrelevant since it is an expectation of the community that one has to have children soon after marrying, and continue to have. Culturally, it having children ensures continuity of family lineage, and heirs to families.

o Secondly; Stigmatization: labeling of the HIV positive women as people who bring problems to their communities pushes the women into social and cultural stigma which works negatively towards their health and general well being in families and communities.

o Thirdly, health care decision making; I find thinking on behalf of the HIV positive women and deciding what they should and should not be in the context of reproductive health infringing on their women and more so human rights. This further raises a lot of questions on the pertinent issue of respect and dignity of these women.

o Fourthly; HIV prevention, care, treatment and management: The threat to withhold ARVs belittles the international calls aimed to ensure universal access to health care by all people. It undermines the MDG’s call for more equitable, affordable, and comprehensive HIV services and as a platform to social justice which had inspired many people and communities everywhere to do better. It further waters down the high level meeting on AIDS and Beyond which established commitment of global community to vision of zero new HIV infections, Zero discrimination and zero AIDS related deaths(UNAIDS. 2011 Report).

o Injustice and abuse of rights ;All individuals—including those living with HIV—have the basic right to decide the number and spacing of their children and to have the information, education, and means to do so, free from discrimination, coercion, and violence. Access to voluntary family planning services ensures that women, youth and men living with HIV can exercise their right to the highest attainable standard of sexual and reproductive health, and allows for the management of family size and prevention of vertical transmission of HIV(UNAIDS. 2011 Report). This was not the case for the study’s 40 HIV positive women who were coerced to undergo sterilization since their right to choose which family planning method would work for them was seriously violated.

There is need to address the family planning issues that befell the HIV positive women by following the procedure and through all channels in Kenya. I am convinced that by addressing this important matter will help innocent women who may succumb into the hands of uncaring health practitioners who may only leave them with long term effects. Very importantly, there is also need to give the needed pastoral care and counsellling support to this group of women who face the new reality; never to have children in marriage, even when research has shown that HIV positive women are giving birth to bouncing babies who are HIV negative.

o Recommendations

 There is need to work on a systemic framework for integrating family planning and antiretroviral therapy services to women living with HIV.

 Implementation of guidelines on family planning that enhances the holistic health of the women living with HIV, her family and the community.

 Exercising the freedom of choice of the healthcare and family planning services by HIV women.

 Ensure Sensitivity at all levels and in all quarters to the social, psychological, spiritual, cultural, human, women needs and rights of all people irrespective of their health status.

Concluding remarks:
As a clinical pastoral therapist, I can only imagine the challenges the 40 women and many others who have not disclosed have gone through. I can imagine their aspirations and dreams of becoming mothers and wives one day in their lives. I can also imagine the potential they had, of raising sons and daughters and doing personal and community development. To some, all these have been shattered. They can never have children, and the number of children they wished for. To others, their dreams of marrying were cut short because of childlessness. And worse still, in the light of positive research that has increasingly shown that HIV positive women can have HIV negative children-those who were sterilized have their dreams of ever becoming a mother shattered. They can’t enjoy the fruits of this research because the procedure they had is irreversible.

This story was written for World Pulse’s Ending Violence Against Women Digital Action Campaign.

World Pulse believes that women's stories, recommendations, and collective rising leadership can—and will—bring an end to gender-based violence. The EVAW Campaign elicits powerful content from women on the ground, strengthens their confidence as vocal grassroots leaders, and ensures that influencers and powerful institutions hear their stories.
Learn more »

Comments

Dear EK.
Mambo! I find this post very important to the discussion of reproductive rights and health. It saddens me that involuntary sterilization continues to this day in many parts of the world. There has been evidence of involuntary sterilization among HIV positive women in the Asia-Pacific region as well, despite the knowledge by medical professionals that mother-to-child transition of HIV is, in fact and as you note, preventable. This issue to me is a clear violation of HIV+ women's basic human rights. Not only do you shed light on this important issue but I really appreciate your recommendations! Keep up the good work in Kenya and many thanks for your post.
In solidarity,
Shelley Megquier

Mambo Poa! and Thank you Shelly for your kind comments. I totally agree with you that the concerns of our womenfolk, especially those living with HIV are critical and need a voice. I also realize that the implications are diverse and weighty, and calls for our solidarity with women experiencing all these. similarly, there is need for a positive move towards influencing policies affecting women around the globe to change the care to women in the marginalized worlds(the so called-third world-Africa & Asia included).
Again thank you.

EK Chemorion

Wendyiscalm's picture

Thank you for making us aware

Dear Ek,

Thank you for sharing in such detail your article. It is necessary to always keep up mindful of these attrocities and the fact that we must step up and do something.

I work in Livingstone Zambia with street orphans and vulnerable children. I just returned last night and go back again in November. Two days ago, I did what I have been doing for a couple of years. A couple of years ago, some of my older street orphans were watching a movie in my hotel room and a girl was raped. The boys were laughing. I stopped the movie and said "If that was your mother being raped, would you be laughing". They became sad and serious and said "No". It was the opening to a continuing discussion each time I am there (4 months out of the year) about HIV/AIDS and the role MEN and BOYS have in making changes so that women do not get HIV and transmit it to their infants and all the rest of it. We just had a discussion about it two night ago and I asked them to talk to some of their other young men friends about it. As you know, women are punished severely and even returned to their family in shame sometimes if she refuses to have sex with her husband without a condom.

I appreciate you keeping me and others aware of this problem.

Ubuntu (I am who I am because of who we are together)

With love,

Wendy Stebbins

Wendy Stebbins
Founder/CEO
I AM ONE IN A MILLION Non-Profit Organization focused on helping street orphans and vulnerable children in Livingstone, Zambia Africa.

susa's picture

Your voice and work will make a difference

Dear EK,

Thank you for your informative and compelling voice on the issue of women's health and human rights obstacles in relation to health status (HIV, specifically) and reproductive choice. While I had read and heard news of the particular situation of the 40 HIV positive women in Kenya who had undergone coerced sterilization, your words helped to put the story in a societal context. You tell a story that will resonate with all advocates of a woman's right to choose her own path in reproductive health and helps educate all of us who so dearly treasure this oft-denied right. Please keep sharing your knowledge and convictions with anyone who will listen. You have a powerful message.

I was especially moved by your statement (and I paraphrase a bit here) that sterilization renders a married woman irrelevant -- and thus may contribute to many problems in marriage, family and community. This is something that helps those of us far removed from your everyday encounters as a clinician and counselor see that what you are describing -- extortion of consent -- is not just dehumanizing, but life shattering. Thank you for sharing this perspective.

I was especially dismayed to learn of the threat to withhold ARVs -- a form of physiological and psychological blackmail -- from these HIV positive women. Word of this practice needs to get out and into the light so that every organization working in HIV/AIDS mitigation or advocating for women's reproductive rights can address resources to combatting this practice. Please keep writing and talking about this!

Again, thank you for your informed and passionate voice. Keep on keeping on!

Sincerely,
Susa

girovago's picture

Dear EK, I'm shocked and

Dear EK,

I'm shocked and saddened at having read your post. As a mother to a little boy who is not yet two-years-old, the thought that had I been born in different circumstances my right to bear children could have been taken away from him is so frightening.

I struggle to understand how medical professionals can be so disconnected and lacking in empathy towards the people they are supposed to serve. I can only imagine that those decisions come from a place where individuals are seen as statistics rather than human beings. It is so very depressing.

What is heartening is to know that there are people like you who are taking the time to raise awareness of these human rights abuses. It is essential that those who are taking the decision to treat women this way know that their actions will not go unreported.

Are there civil society groups in Kenya that are pressing the government to make sure that the findings of this report (if they ever surface) aren't hidden away but rather lead to a change in behaviour?

Once again, thanks for sharing and best of luck in your work that is so crucially important!

Magazine »

Read global coverage through women's eyes

Letters to a Better World

Letters to a Better World

Community »

Connect with women on the ground worldwide

VIRGIN ISLANDS: Queens Igniting Fire Ending Violence

VIRGIN ISLANDS: Queens Igniting Fire Ending Violence

Campaigns »

Be heard at influential forums

WWW: Women Weave the Web

WWW: Women Weave the Web

Programs »

Help us train women citizen journalists

World Pulse Voices of Our Future

World Pulse Voices of Our Future

Blog »

Read the latest from World Pulse headquarters

World Pulse Launches our Inaugural Community Advisory Board!

World Pulse Launches our Inaugural Community Advisory Board!

Partners »

Join forces with our wide network of partners

Nobel Women's Initiative

Nobel Women's Initiative