CNN Hero Betty Makoni on “Save 9 year old Ariana-Leilani Coalition” Radio Show
Zimpowerfm where Betty Makoni is a radio hostess has gone a step further by joining a campaign to save a 9 year old girl with a rare disease. Join us today on www.zimpowerfm.com
Nine year old Arina has no treatment in USA right now . There are many lives of children being lost in the world because there is no treatment. We must unite as one world and get leaders to respond urgently.
All we need is your signature and please follow link http://www.gopetition.com/news-releases/315/save-ariana-leilani-s-life.html
“Save Ariana-Leilani Coalition” Radio Show 2nd September 2012
Radio Program: Girl Child Network Worldwide, Sunday, 2 September 2012
at 12 midnight UK time, Geneva: 1am,19:00 New York ,
Call in numbers for free
Ms. M. Betty Makoni- Founder & President, Girl Child Network Worldwide
Topic: 9-Year Old Ariana-Leilani with untreated Sever Chronic Neutropenia
1. Ms. Homarya Sellier - Founder and President Innocence in Danger
2. Mr. Roy Morris, Esq. - Lawyer, Pro-bono Public Interest, and human rights
3. Ms. Amanda - Experiences with child with Neutropenia;
4. Ms. Jessica Burnham, BA, - Media consultant for SAL Campaign;
5. Dr. Ariel King - Mother of Ariana-Leilani, Founder of Ariana-Leilani Children’s
Foundation, and The Ariel Foundation International;
Muzvare Betty Makoni, http://muzvarebettymakoni.org/
Save Ariana-Leilani Coalition, www.ariana-leilani.org
Innocence in Danger Worldwide, www.innocenceindanger.org
National Neutropenia Network, www.neurtropenia
Ariana-Leilani Children’s Foundation, www.ariana-leilanifoundation.org
Ariel Foundation International, www.arielfoundation.org
“One in a Million” Severe Chronic Neutropenia (Suspicious& Untreated)
A 9-year old dual German/ USA citizen has been named “The Little Ambassador” currently is in Washington, DC with a life-threatening very rare (one in a million people) blood and bone marrow disorder called “severe chronic neutropenia”.
For 3 years she has been on the Severe Chronic Neutropenia International Registry (SCNIR) with less than 1000 people world-wide. For over 4 years her father and his medical colleague have denied her the only non-surgical treatment, a medicine, G-CSF or “neupogen” that is free to her. Yet she is given psychotropic medication for ADHD that is secured at the hospital on a monthly basis. Untreated SCN can lead to toxic shock, loss or limbs or loss of life.
All children / adults with SCN who did not receive neupogen have died.
Ms. Homarya Sellier
An international, non-profit association created by a group of citizens on 15 April 1999, at the initiative of the UNESCO Director-General, Federico Mayor, and under the presidency of Ms. Homayra Sellier, in response to the recommendations of the UNESCO expert meeting convened in January 1999 on Sexual Abuse of Children, Child Pornography and Paedophilia on the Internet, in order to pursue the objectives of the Action Plan adopted by the experts to combat sexual abuse of children. Since 15 April 2000, Innocence in Danger was formalised and operated independently of any other organisation. Innocence in Danger operates in 29 countries throughout the world, with partners who share the same objectives. IID thus brings together militants, Internet specialists, jurists, political decision-makers, businessmen, media and national action groups to sensitise world opinion on the increasing problems of paedo-criminality.
Innocence in Danger represents an action force to sensitise and catalyse, educate and inform governmental and non-governmental bodies, European and international intergovernmental bodies, business enterprises, and the general public – schools, community associations, the youth. Aside from those persons explicitly listed on our website as officials of the bureaux of Innocence in Danger associations in England, France, Switzerland, Germany, USA, Canada and Columbia.
Mr. Roy L. Morris, MBA, JD
Lawyer, Pro-bono Public Interest and Human Rights
Roy L. Morris has expertise in complex litigation case management, economics, finance, telecommunications regulation, administrative law, angel and venture capital, and communications and control systems engineering. Mr. Morris is the former Chair for Massechusettes Institute for Technology (MIT) Enterprise Forum Washington DC/Baltimore, high tech startup advisor, and former adjunct professor at Capitol College Graduate School. He has also provided strategic advice to non-profits as part of the COMPASS program of Greater DC Cares.
Parent of Child with Neutropenia
Amanda is a mother with a child with Neutropenia. She has learned all that she can to save her child. The points she will focus on are:
1. Fear and devastation, learning about Neupogen gave us relief.
2. Bacteria inside our bodies not being regulated is vastly more dangerous than the "germs" of the outside world, which is why Neupogen is so important - good hygiene isn't enough. Profilactic antibiotics aren't enough
3. I have met others individuals from the US and England who have fought for Neupogen, often includes finding a new doctor who is willing to learn about the disease. A few are still fighting for Neupogen. This is what a normal parent does when they learn their child is neutropenic. First step is do what you can to protect your child, second step is to determine the cause. We have doctors that acted immediately on both.
Ms. Jessica Burnham, BA
Human rights & Media Consultant for Save Ariana-Leilani Coalition
Jessica Burnham studied Sociology, Peace and Justice Studies, and Gender Studies at Utah Valley University. She has worked with organizations such as the Center for Women and Children in Crisis, Child Rescue, the Utah Women and Education Project, the Worldwide Organization for Women, as well as Girl Child Network Worldwide. She is currently working as a Media Consultant for the Save Ariana-Leilani Coalition.
Dr. Ariel King
Mother of Ariana-Leilani, Founder of Ariana-Leilani Children’s Foundation and The Ariel Foundation International
Dr. King after working with and for children since she was a teenager, finally gave birth to Ariana-Leilani, her first and only child at 41 years old. She considered her pregnancy and birth a miracle and blessing from G-d. Ariana-Leilani is named after the “Ariana” next to the UN Palais de Nations in Geneva
And Leilani means from heaven. Ariana-Leilani is “holy one from heaven.”
Dr. King has given presentations internationally on various research topics and has publications on the topics of HIV/AIDS, international health policy, national drug policy, medical ethics, health legislation, organ transplantation, and breast cancer; kangaroo care for newborns; and children’s human rights.